Bereaved participants’ reasons for wanting their real names used in thanatology research

Concept development : new directions for research in thanatology and nursing

The article aims to present the importance of concept development for the construction of the body of knowledge in thanatology and nursing. Discusses the steps of the Hybrid Model of Concept Development and its application in a study that seeks to develop the concept of good death in a pediatric ICU. The elucidation of the antecedents, attributes and consequences of the concept of good death in...

Disseminating research results to research participants and their communities.

Pan thanatology

Chimpanzees' immediate responses to the death of a group-member have rarely been described. Exceptions include maternal care towards dead infants, and frenzied excitement and alarm following the sudden, traumatic deaths of older individuals [1-5]. Some wild chimpanzees die in their night nest [6], but the immediate effect this has on others is totally unknown. Here, with supporting video materi...

Reciprocity-Based Reasons for Benefiting Research Participants: Most Fail, the Most Plausible is Problematic

A common reason for giving research participants post-trial access (PTA) to the trial intervention appeals to reciprocity, the principle, stated most generally, that if one person benefits a second, the second should reciprocate: benefit the first in return. Many authors consider it obvious that reciprocity supports PTA. Yet their reciprocity principles differ, with many authors apparently unaw...

Research participants' opinions on genetic research and reasons for participation: a Jackson Heart Study focus group analysis.

The Jackson Heart Study (JHS) convened focus groups to engage the community in dialogue on participation in the National, Heart, Lung and Blood Institute's Candidate Gene Resource (CARe) project. CARe, a genome wide association and candidate gene study, required the release of participant phenotypic and genotypic data with storage at NIH for widespread distribution to qualified researchers. The...